By supporting the 2023 Red Diamond Gala, you will help fund research projects to develop treatments and cures for children suffering from rare diseases.
Our first project: getting children with Aspartylglucosaminuria (AGU) to a clinical trial.
Pre-clinical research has been completed. The results show that gene replacement therapy is a viable treatment for AGU. Funding pays for the drug and gene therapy safety study.
Once we have covered associated clinical trial fees, costs such as travel, hospital stays and lodging during and after the treatment will be covered for our AGU families.
With the promise (and successes!) of gene therapy growing, our charity is determined to use the science we are engaged in to help more families whose children suffer from other rare diseases.
For questions about the Red Diamond Gala or our Charity you can contact us at:
